Researchers making new push in cancer cluster search

www.mcall.com/news/local/mc-tamaqua-cancer-cluster-20120430,0,6418002.story

By Andrew McGill, Of The Morning Call
11:26 p.m. EDT, April 30, 2012

After a long year, Pennsylvania’s coal country still knows only three things for sure.

People are getting cancer in the region, rare cancer. They’re dying. And no one can say why.

In a Centers for Disease Control investigation that has already stretched seven years and is likely to last several more, researchers are returning to Carbon, Luzerne and Schuylkill counties in force next week, setting up shop in hospitals to interview the sick and collect data.

Their question is the same as last year’s, and the year before that, and the year before that: Exactly how many people have the blood-thickening cancer that, while supposedly rare, seems all too common in the three counties?

“We’re really hoping to get one last wave of interviews and consents here,” said Jeanine Buchanich, a researcher at the University of Pittsburgh working with the CDC. “As it draws to a close it’s growing more and more important that people get back to us.”

Polycythemia vera puts the body’s blood-producing cells into overdrive, clogging arteries with up to five times as many red blood cells as normal. Itching, headaches and fatigue are the milder symptoms — if left untreated, the cancer can form fatal blood clots.

The most popular treatment tends to the medieval: bloodletting, which goes by “phlebotomy” these days and has been shown to reduce congestion in arteries. But a fancier name doesn’t make the process any more pleasant, and patients need treatment as often as once a month.

Nationwide, researchers think only one in 100,000 people have the disease. Scientists say that percentage is much higher in coal country, and the CDC has officially labeled the area a cancer cluster since 2005, a rare designation from a cautious agency.

More than $8 million has been spent to find out what’s making people sick. Two universities — the University of Pittsburgh and Drexel University — are conducting studies. A pair of hospitals are running their own tests.

It hasn’t been easy going.

Of the 340 potential Polycythemia vera patients Pitt scientists have contacted, only 80 have agreed to hand over their medical records. Even the promise of $50 gift cards couldn’t persuade the 30 people who refused to participate, or the hundreds more who haven’t responded.

Buchanich hopes her full-court press for more participants May 8-10 will change a few minds, but it is looking likely the study will end with far fewer subjects than she had hoped.

“We’re hoping to get that number as high as we can before we have to close the study,” Buchanich said. “We’ll be kind of dependent on how this goes.”

Then there’s the local community, which has watched its seat at the table shrink as the investigation continues. Funding for a liaison group linking research scientists and residents ended last year, and volunteers are still months away from securing the nonprofit status that would allow them to raise money.

In the meantime, many residents have doubts about the state Department of Environmental Protection’s investigation into environmental factors. Pennsylvania’s coal country has no lack of those, with toxic dumps from a long industrial history still festering in hills and crannies. Every resident has a theory for which spill or leak made their neighbors sick.

But a 28-point list of concerns to the CDC — why aren’t investigators sampling air inside homes? Will coal dust be considered as a possible cause? — was largely dismissed by the agency, with officials siding with their hired contractor.

Local activists say the lack of funding means they won’t be able to weigh in on study methodology before tests are conducted. As of late, federal officials haven’t even told them what’s going on, they say.

It was the residents who first brought to light the fact that their friends were dying, said Joe Murphy, coordinator of the Community Action Committee, a coal region group.

“And now we’re being told, ‘Thanks, see you later,'” he said. “We’re tossed to the side.”

andrew.mcgill@mcall.com

610-820-6533

Copyright © 2012, The Morning Call

Relax, It’s Just a Run-of-the-Mill Nuke Spill

www.counterpunch.org/2012/04/26/relax-its-just-a-run-of-the-mill-nuke-spill/?utm_source=rss&utm_medium=rss&utm_campaign=relax-its-just-a-run-of-the-mill-nuke-spill

by DAVE LINDORFF
April 26, 2012

The Limerick Incident Wasn’t an “EPPI”

A little over a month ago, back on March 19, at 3:00 in the morning, the Limerick Nuclear Power Station, which runs two aging GE nuclear reactors along the Schuylkill River west of Philadelphia, had an accident.  As much as 15,000 gallons of reactor water contaminated with five times the official safe limit of radioactive Tritium as well as an unknown amount of other dangerous isotopes from the reactor’s fission process blew off a manhole cover and ran out of a large pipe, flowing into a streambed and on into the river from which Philadelphia and a number of smaller towns draw their municipal water supplies.

No public announcement of this spill was made at the time, so the public in those communities had no idea that it had occurred, and water system operators had no opportunity to shut down their intakes from the river.  There was no report about the spill in Philadelphia’s two daily newspapers or on local news programs.

Only weeks later, after the regional office of the Nuclear Regulatory Commission was finally sent an official report by Exelon, the owner of the plant, did a public notice get posted on the NRC’s  website, after  which some excellent reporting on the incident was done by Evan Brandt, a reporter for a local paper called The Pottstown Mercury.

We contacted the NRC regional office with oversight over Limerick and were told that Exelon had only reported the incident to state authorities — the Department of Environmental Protection (DEP) and the Pennsylvania Emergency Management Agency (PEMA). A call to the DEP elicited a response that the state agency, now in the hands of a Republican governor who has shown open distain for environmental concerns ranging from nuclear waste to regulation of natural gas fracking chemicals, that it did not feel it was necessary to issue any public report on the spill. “Exelon assured us that it was not an EPPI incident,” explained DEP regional office spokeswoman Deborah Fries.

“What’s an EPPI?” she was asked. “It’s an Event of Potential Public Interest,” Fries replied.

In other words, Exelon and the state’s DEP  and PEMA officials, meeting behind closed doors, agreed that the spilling of up to 15,000 gallons of radioactive isotope-laced reactor water into a river that supplies drinking water to hundreds of thousands of people was not an event of “potential public interest,” and so they didn’t make it public, thus insuring that it would not become a matter of public interest, or even of public knowledge!  The logic is impeccable, though the NRC subsequently protested that Exelon should have reported the incident to the commission, which would automatically have posted it on its website as public notice of a spill.
Read more

Study: ’Fracking’ may increase air pollution health risks

www.timesleader.com/stories/Study-Fracking-may-increase-air-pollution-health-risks-,129383

By Neela Banerjee, Los Angeles Times

Air pollution caused by hydraulic fracturing, a controversial oil and gas drilling method, may contribute to “acute and chronic health problems for those living near natural gas drilling sites,” according to a new study from the Colorado School of Public Health.

The study, based on three years of monitoring at Colorado sites, found a number of “potentially toxic petroleum hydrocarbons in the air near the wells including benzene, ethylbenzene, toluene and xylene.” The Environmental Protection Agency has identified benzene as a known carcinogen.

Soon to be published in an upcoming edition of Science of the Total Environment, the report said that those living within a half-mile of a natural gas drilling site faced greater health risks than those who live farther away. Colorado allows companies to drill for natural gas within 150 feet of homes.

Hydraulic fracturing, or fracking, involves injecting great volumes of water and sand laced with chemicals into shale formations to break apart the rock and unlock reservoirs of oil and gas. Its advocates say it carries minimal environmental risks and the chance of great economic rewards for companies and communities. Its critics have largely focused so far on fracking’s possible contamination of underground and surface water.

But when a well is fracked, it’s almost as if a small factory is rapidly erected at the drilling site, as machinery and tanks of chemicals and water are brought in. Studies have shown that air pollution at many of these sites is greater than in surrounding areas. Adhering to EPA standards, the researchers for this study used air toxics data collected in Garfield County from January 2008 to November 2010. A small rural community in Colorado, Garfield is poised to undergo a sharp increase in drilling activity.

The study pointed out that earlier research indicated that prolonged exposure to petroleum hydrocarbons in the air near refineries, oil spills and petrol stations pointed to “an increased risk of eye irritation and headaches, asthma symptoms, acute childhood leukemia, acute myelogenous leukemia, and multiple myeloma.”

“Our data show that it is important to include air pollution in the national dialogue on natural gas development that has focused largely on water exposures to hydraulic fracturing,” said Lisa McKenzie, Ph.D., M.P.H., lead author of the study and research associate at the Colorado School of Public Health.

The EPA is finalizing new rules to curtail air pollution at oil and gas drilling sites. A recent Bloomberg News poll suggested a majority of Americans would like to see tighter regulation of fracking.

Officials: Threat of radon high in state

www.timesleader.com/news/Officials__Threat_of_radon_high_in_state_01-31-2012.html

By NAOMI CREASON The Sentinel, Carlisle
January 31, 2012

There are a number of concerns when buying or owning a home, but the state Department of Environmental Protection is hoping homeowners pay attention to a specific odorless and radioactive gas — radon.

Bob Lewis, the program manager for DEP’s Radon Division, finds that most people don’t really think of radon, even though Pennsylvania residents should worry about the levels in their home.

“Pennsylvania could be one of the worst states in the country,” Lewis said. “There’s a handful of states that show high levels of radon, and we’re up there. I think about 49 of the 67 counties in the state are EPA zoned 1 counties. It’s just a characteristic of our geography. It’s easy for gas to migrate through the ground.”

The federal Environmental Protection Agency splits the country into three zones of radon levels, with Zone 1 being the highest and Zone 3 having the lowest levels. Pennsylvania just happens to find itself in a Zone 1 hotspot, where levels of radon are most often above the acceptable limit. Not all of Pennsylvania is Zone 1.

Radon is a gas that rises from the soil. Radon levels are low enough outside that no one really has to worry about the risk being outside. However, radon can build up in enclosed spaces, such as homes, and increase the level of indoor radon to dangerous levels.

Radon is the second leading cause of lung cancer, and the leading cause in non-smokers. Radon is expected to be the cause of 20,000 lung cancer deaths every year, according to the DEP.

“Radon affects the lungs,” Lewis said. “Because it’s a gas, you breathe it in. The particles lodge on the lining tissue in the tracheal/bronchial part of the lung, and those particles are radioactive. It gives off radioactive emissions in the lung, which affects the DNA.”

There isn’t a set exposure level of radon that means all residents will get lung cancer. Those who smoke are much more likely to get lung cancer when being additionally exposed to radon, while it could be hit-and-miss for non-smokers who live in homes with high levels of radon, especially depending on how long a person has lived in that home.

“The best possible thing you can do is test your house,” Lewis said. “It’s so easy to do. You can get a test kit that costs $25 or $30 from a home center and test your house. We generally test in the basement, so you get the worst-case scenario number. People don’t realize they could test for it. I’ve been doing this for 25 years, and that seems to be the biggest misconception.”

Midwest utility to shut coal-burning power plants

www.miamiherald.com/2012/01/26/2610545/midwest-utility-to-shut-coal-burning.html

By BOB DOWNING
Thursday, 01.26.12
Akron Beacon Journal

AKRON, Ohio — FirstEnergy Corp. on Thursday said it will retire six coal-fired power plants, including four in Ohio, because of stricter federal anti-pollution rules.

The six older and dirtier plants will be closed by Sept. 1.

“It was a tough decision,” said Charles D. Lasky, vice president of fossil fleet operations for FirstEnergy Generation Corp.

FirstEnergy will be among the first American utilities to close aging, polluting power plants after tighter federal clean-air rules were finalized last month.

FirstEnergy had been keeping a close eye on proposed federal rules on mercury, heavy metals and air toxics from coal-burning power plants for years, Lasky said.

The new rules provided FirstEnergy with “sufficient certainty” to proceed with the closings, he said.

The federal mandate that improvements be completed within three years was a factor in the decision to retire the six plants, which represent 12 percent of the utility’s generation capacity, he said.

The decision affects 529 workers who will be eligible for severance benefits, the Akron-based utility said.

It indicated that the number of affected workers might be less because some might be considered for other openings within the company and because of a new retirement benefit being offered to workers 55 and older.

About one-third of those 529 workers are eligible for retirement. The utility has about 100 openings in its fossil fuel division, officials said.

The plants to be closed are:

-Bay Shore Plant, Boilers 2-4, in Oregon, Ohio, outside Toledo. One boiler with anti-pollution equipment will remain open.

-Eastlake Plant with five boilers, Eastlake.

-Ashtabula Plant, Ashtabula.

-Lake Shore Plant, Cleveland.

-Armstrong Power Station, Adrian, Pa.

-R. Paul Smith Power Station, Williamsport, Md.

The Eastlake plant is the largest, capable of producing 1,233 megawatts; the Williamsport plant is the smallest at 116 megawatts.

The average age of the six plants is 55 years, Lasky said.

The closings were triggered by the U.S. Environmental Protection Agency’s new Mercury and Air Toxic Standards (MATS), which were finalized Dec. 21.

Reducing emissions of mercury, heavy metals and airborne toxics from coal-burning power plants will protect people’s health, the EPA said.

Installing anti-pollution equipment on small, old power plants was not economically feasible, FirstEnergy concluded.

Lasky declined to say how much it would have cost FirstEnergy to equip the plants with bag houses, activated carbon filters and lime or sorbent injection systems to meet the new federal rules.

FirstEnergy saw no advantage to waiting to see whether legal challenges might overturn the new rules, said Ray Evans, executive director of environmental for FirstEnergy Services.

In some cases, there is not enough land around the old plants to install anti-pollution equipment, he said.

Fracking Moratorium Urged as Doctors Call for Health Study

www.businessweek.com/news/2012-01-10/fracking-moratorium-urged-as-doctors-call-for-health-study.html

By Alex Wayne
January 10, 2012

The U.S. should declare a moratorium on hydraulic fracturing for natural gas in populated areas until the health effects are better understood, doctors said at a conference on the drilling process.

Gas producers should set up a foundation to finance studies on fracking and independent research is also needed, said Jerome Paulson, a pediatrician at George Washington University School of Medicine in Washington. Top independent producers include Chesapeake Energy Corp. and Devon Energy Corp., both of Oklahoma City, and Encana Corp. of Calgary, according to Bloomberg Industries.

“We’ve got to push the pause button, and maybe we’ve got to push the stop button” on fracking, said Adam Law, an endocrinologist at Weill Cornell Medical College in New York, in an interview at a conference in Arlington, Virginia that’s the first to examine criteria for studying the process.

Fracking injects water, sand and chemicals into deep shale formations to free trapped natural gas. A boom in production with the method helped increase supplies, cutting prices 32 percent last year. The industry, though, hasn’t disclosed enough information on chemicals used, Paulson said, raising concerns about tainted drinking water supplies and a call for peer- reviewed studies on the effects. The EPA is weighing nationwide regulation.

Longstanding Process

“We need to understand fully all of the chemicals that are shot into the ground, that could impact the water that children drink,” Representative Ed Markey of Massachusetts, a senior Democrat on the House Energy and Commerce Committee, said in a phone interview. The industry is trying “to block that information from being public,” he said.

The gas industry has used hydraulic fracturing for 65 years in 30 states with a “demonstrable history of safe operations,” said Chris Tucker, a spokesman for Energy In Depth, a Washington-based research and advocacy group financed by oil and gas interests, in an e-mail. Drilling in shale deposits in the eastern U.S. began in 2004.

Gas drillers have to report to the U.S., state and local authorities any chemicals used in fracking that are “considered hazardous in high concentrations” in case of spills or other emergencies, Tucker said. Those reports don’t include amounts or concentrations, he said.

The industry created a public website last April for companies to voluntarily report lists of chemicals used in individual wells, including concentrations. Colorado and Wyoming have passed laws requiring drillers to file reports to the website, Tucker said.

Hazards Unknown

Despite those disclosures, U.S. officials say they don’t know all of the hazards associated with fracking chemicals.

“We don’t know the chemicals that are involved, really; we sort of generally know,” Vikas Kapil, chief medical officer at National Center for Environmental Health, part of the U.S. Centers for Disease Control and Prevention, said at the conference. “We don’t have a great handle on the toxicology of fracking chemicals.”

The government has found anecdotal evidence that drilling can contaminate water supplies. In December, the EPA reported that underground aquifers and drinking wells in Pavillion, Wyoming, contained compounds that probably came from gas drilling, including glycols, alcohols, benzene and methane. The CDC has detected “explosive levels of methane” in two wells near gas sites in Medina, Ohio, Kapil said.

He said he wasn’t authorized to take reporters’ questions after his presentation.

Chemicals Used

Fluids used in hydraulic fracturing contain “potentially hazardous chemical classes,” Kapil’s boss, Christopher Portier, director of The National Center for Environmental Health, said last week. The compounds include petroleum distillates, volatile organic compounds and glycol ethers, he said. Wastewater from the wells can contain salts and radiation, Portier said.

U.S. natural gas production rose to a record 2.5 trillion cubic feet in October, a 15 percent increase from October 2008.

A moratorium on fracking pending more health research “would be reasonable,” said Paulson, who heads the Mid- Atlantic Center for Children’s Health and the Environment in Washington, in an interview. His group is funded in part by the CDC and Environmental Protection Agency, he said, and helped sponsor the  conference with Law’s organization, Physicians Scientists and Engineers for Healthy Energy.

Tucker called the CDC’s participation in the conference “disappointing,” saying the conference is “a closed-door pep- rally against oil and natural gas development.”

Representatives of Chevron Corp., Exxon Mobil Corp. and the American Petroleum Institute, a trade group, registered to attend the conference.

–With assistance from Katarzyna Klimasinska in Washington. Editors: Adriel Bettelheim, Reg Gale

To contact the reporter on this story: Alex Wayne in Washington at awayne3@bloomberg.net

To contact the editor responsible for this story: Adriel Bettelheim at abettelheim@bloomberg.net

Overexposure to radon: Second leading cause of lung cancer in the U.S.

Contact: Bonnie Smith, 215-814-5543, smith.bonnie@epa.gov

Overexposure to radon: Second leading cause of lung cancer in the U.S.

Free television, print and audio pieces available for January – Radon Action Month

PHILADELPHIA ( January 5, 2012) – The U.S. Environmental Protection Agency has declared January as Radon Action Month as part of the agency’s on-going efforts to make families aware of the health hazard presented by radon in homes.

EPA has created several free, publicly-available graphics about radon, and a public service announcement campaign for print, television, and radio at http://www.epa.gov/radon encouraging families to test their homes for radon.

EPA’s newest campaign is Living Healthy & Green.

Radon enters homes from underground. So, living healthy and green starts from the ground up. By preventing radon from entering homes, every family can have safer, healthier air to breathe.

EPA developed Living Healthy & Green to educate the public about how easy it can be to mitigate radon. Part of the campaign features former NFL kicker Fuad Reveiz, now a home builder who uses radon-resistant construction and encourages others to do the same.

The 30 second television and radio pieces are available copyright free. The campaign is available in multiple media formats and sizes for newspapers, magazines, billboards and the web in both English and Spanish. Elements can be viewed and ordered on line at www.epapsa.com/campaigns/greensox/.

Audio podcasts about radon provide interview topic ideas, see: http://www.epa.gov/region3/multimedia/frame1contents/audio_topics.html.

New study determines states offer inadequate coal ash protection

http://www.tnonline.com/2011/aug/25/new-study-determines-states-offer-inadequate-coal-ash-protection
Thursday, August 25, 2011

A new study finds that state regulations regarding coal ash disposal are inadequate to protect public health and drinking water supplies for nearby communities. The information comes as federal regulations – the first of their kind – are under attack by a hostile Congress bent on derailing any effort to ensure strong, federally enforceable safeguards for coal ash, America’s second largest industrial waste stream.

Earthjustice and Appalachian Mountain Advocates (formerly the Appalachian Center for the Economy and the Environment) released “State of Failure: How states fail to protect our health and drinking water from toxic coal ash,” a review of state regulations in 37 states, which together comprise over 98 percent of all coal ash generated nationally. The study highlights the lack of state-based regulations for coal ash disposal and points to the 12 worst states when it comes to coal ash dumping: Alabama, Georgia, Illinois, Indiana, Kentucky, Missouri, North Carolina, Ohio, South Carolina, Tennessee, Texas, South Carolina and Virginia.

There are currently nearly 700 coal ash ponds and hundreds of coal ash landfills in the U.S., most of which operate without adequate liners and water quality monitoring, and have been operating as such for decades. Most states do not require coal ash dumps to employ the most basic safeguards required at landfills for household garbage.

State of Failure includes detailed information on basic disposal safeguards, such as groundwater monitoring, liners, isolation of ash from the water table, and financial assurance requirements in 37 states where coal ash is currently generated and disposed.

Coal ash is the toxic remains of coal-fired power plants; enough is generated each year to fill train cars stretching from the North Pole to the South Pole. The ash contains toxic metals, including arsenic, hexavalent chromium, lead, mercury, and selenium. Coal ash is commonly dumped into unlined and unmonitored ponds and landfills. There are well over a hundred documented sites where coal ash has contaminated drinking water or surface water.

The EPA is currently considering a federal proposal to regulate coal ash that includes two options: the first option would classify coal ash as hazardous waste, requiring water quality monitoring, liners and the phase out of dangerous “wet” storage of coal ash, such as the pond that collapsed in Kingston, Tennessee in 2008. The second option would continue to allow states to inadequately regulate coal ash by establishing only guidelines that states are free to ignore. Within the industry, coal ash generators support the weaker option. The EPA, under pressure from industry, has postponed finalizing the coal ash standard until 2012.

But coal ash allies in the U.S. Senate and the House of Representatives are not content with delay. Two bills currently moving through the House seek to undermine any efforts by the EPA to set federal enforceable safeguards for coal ash disposal. Both bills require EPA to let the states – and the states alone – decide how to regulate ash, with little federal oversight.

“This report proves unequivocally that state programs, without federal mandates or oversight, are a recipe for disaster when it comes to protecting our health and our environment,” said Lisa Evans, senior legislative counsel at Earthjustice and a co-author of the study. “Strong, federally enforceable safeguards are needed to guarantee that our drinking water remains free of arsenic, lead, mercury and other toxic metals found in coal ash. The myth that states are doing a good job protecting Americans from coal ash is busted.”

“The problem with relying on state regulations is that they are not designed for the unique problems of coal ash generally and coal ash impoundments particularly,” said Mike Becher, the Equal Justice Works Fellow at Appalachian Mountain Advocates. “While many coal ash impoundments are regulated by state dam safety programs, these programs were developed to deal with dams holding back water, not toxic substances. State solid waste programs, on the other hand, are not used to dealing with large impoundments and the threat of a catastrophic dam failure like the one seen in Tennessee in 2008.”

Rare blood disease mix-up?

http://www.tnonline.com/2011/aug/19/rare-blood-disease-mix
Friday, August 19, 2011
By DONALD R. SERFASS dserfass@tnonline.com

DONALD R. SERFASS/TIMES NEWS "Do the hemochromatosis people really have polycythemia vera," asks Robert Gadinski at Thursday's public forum on a rare blood disease in our area. The session took place at the Carbon County Emergency Management Center, Nesquehoning.

Is it possible that some folks diagnosed with a blood disease involving a build-up of iron might actually be suffering from a rarer blood disease found in unusual clusters in Carbon, Schuylkill and Luzerne counties?

The condition of iron build up in the blood is called hemochromatosis and it can look like polycythemia vera, the disease currently being investigated in the local area.

At a public forum held Thursday at the Carbon County Emergency Management Center, 1264 Emergency Lane, Nesquehoning, a member of the Tri-County Polycythemia Vera Community Action Committee (CAC) pointed out that symptoms of the two blood diseases are very similar. Robert Gadinski, Ashland, a Schuylkill County hydrogeologist and former employee of the state Department of Environmental Protection, said the issue needs to be studied, especially in looking for the prevalence of a JAK2 genetic mutation found in those with polycythemia vera.

“Do the hemochromatosis people really have polycythemia vera,” asked Gadinski. “Should the JAK2 testing be extended to people diagnosed with hemochromatosis? There are similarities in the symptoms and in the illness itself.”

Hemochromatosis is an inherited disease in which too much iron builds up in the body. It is one of the most common genetic diseases in the United States. The rarer polycythemia vera is not inherited, but is acquired, although the cause is not known.

Representatives of the study panel agreed to look into Gadinski’s concerns.

Last night’s forum, led by CAC Chairman Joe Murphy, Hometown, included a presentation by a team from the University of Pittsburgh coordinated by Jeanine Buchanich. The forum came on the heels of several days of local research by the university team. The session was quickly organized and had limited advance publicity or media notification by the university.

The university is working with the Pa. Department of Health to do an expansion of the original PV study, using data from the Pennsylvania Cancer Registry. Buchanich wants to see as many as possible take part.

“We’re looking to identify cases that haven’t been sent to the Cancer Registry,” said Buchanich. Before the wrap-up session in Nesquehoning, her team had spent several days in the Wilkes-Barre, Pottsville and Hazleton areas interviewing residents and meeting with health professionals.

“We talked to people in the area and obtained ‘consents’ from local PV patients,” she said, calling the trip a success. She emphasized, however, that additional cooperation is still needed.

“We need people to consent (to take part in the study) and to sign their medical records information release,” said Buchanich, adding that a target study completion date is September, 2012.

The study is examining incidences of three blood disorders plus a form of leukemia, and represents just one portion of a multipronged effort aimed at investigating reports of cancer clusters in the three-county region.

About $8.8M is being spent in research and investigations coordinated by the federal Agency for Toxic Substances and Disease Registry (ATSDR) and the CAC.

According to Murphy, some 130 cases of PV had been reported to the Registry between 2006-09 including 67 cases in 2007, but the total working number today is actually down to 33 cases.

“Some have died, some couldn’t be located and some chose not to participate,” explained Murphy.

The forum included a conference call with Dr. Henry Cole, Maryland, and Elizabeth Irvin-Barnwell, leader of the PV project at the Centers for Disease Control, Atlanta.

Before the session, one participant noted that reported cancer cases appear to suggest the presence of similar PV clusters in the Shamokin-Mt. Carmel area of Northumberland County and in the Danville area of Montour County.

Research into the cause of the cancers has been under way for several years. Currently, scientists are gathering data and interviewing residents to determine whether there is a continuing cluster of the rare blood disorder, which can lead to blood clots, heart attacks and strokes.

The Pa. Department of Environmental Protection has been sampling drinking water, and taking dust and soil at the homes of study participants.

In addition, workers have tested water and sediment samples at the McAdoo Superfund site and cogeneration plants in the area.

A team from Drexel University is trying to identify risk factors for the disease.

In other PV-related news, Murphy is organizing the Betty Kester Alliance for a Healthy Future, a 501(c) 3 named for the woman who led the early charge in the fight against PV. She and her husband, residents of Ben Titus Road in Still Creek, both passed away from the illness.

The alliance will pick up where the CAC group ends, aided by grants. Funding for the CAC group stopped almost one year ago. Murphy has been personally financing efforts to create the alliance in order to sustain the work of the CAC group and its scientific advisory team.

Offers of assistance, either in manpower or monetary, can be directed to the alliance. More information is available at (570) 668-9099.

Researchers hone cancer studies

http://standardspeaker.com/news/researchers-hone-cancer-studies-1.1190694#axzz1VTpgZtzW

By SAM GALSKI (Staff Writer)
Published: August 19, 2011

Researchers from the University of Pittsburgh Graduate School of Public Health are inviting residents from parts of Luzerne, Schuylkill and Carbon counties who have been diagnosed with polycythemia vera or related blood disorders to participate in confidential interviews that will be conducted today at Hazleton General Hospital.

The team has interviewed about 50 people in Hazleton and at state health centers in Wilkes-Barre and Pottsville on Tuesday and Wednesday. It plans to conduct a final round of interviews today from 9 a.m. to noon at Hazleton General Hospital, according to Jeanine M. Buchanich, a Ph.D and research assistant professor from the university’s Department of Biostatistics.

Information from the interviews will help researchers confirm roughly 300 PV cases identified in the Pennsylvania  Cancer Registry – and possibly bring undocumented cases to light, Buchanich said.

The findings will be included in a study that will determine whether there is a continuing cluster of a rare blood disorder in the tri-county area that leads to blood clots, heart attacks and strokes and has no known cause.

The study will be completed by September 2012 and will serve as an extension to a study that was completed in 2008 and accounted for cases that were diagnosed up to 2005, she said.

“This study will be from 2009 through now,” she said. “The original study stopped in 2005. We’ve also added other conditions related to PV.”

Chronic myelogenous leukemia, chronic idiopathic myelofibrosis and essential thrombocythemia are among blood disorders that researchers hope to document.

Buchanich reported on progress of the study at Thursday’s Community Action Committee (CAC) meeting at the Carbon County Communications Center in Nesquehoning.

She and other university researchers are working with the Pennsylvania Cancer Registry to contact and get permission to have people with documented PV and other blood disorders included in the study.

“There are over 300 cases identified so far and only 30 have sent in consent forms,” she said. “It’s been a struggle.”

A larger number of participants translates to a more accurate study, she said.

CAC organizer Joe Murphy urged residents to take part in the interviews. Information will be kept confidential and interviews will be conducted in a private office area at Hazleton General, Buchanich noted.

Those who participated in this week’s interviews weren’t all diagnosed with PV, but Buchanich said the group was successful in securing information that could be used in the study.

Researchers originally proposed conducting additional interviews next month, but a representative from the Agency for Toxic Substances and Disease Registry who participated in the meeting via speakerphone said they hope to have much of the information-gathering completed by the first quarter of 2012 so officials can review information and have a final report available later in the year.

Dr. Henry Cole, who also took part in the CAC meeting via speaker phone, urged ATSDR officials to be as transparent as possible as they prepare and release final versions of the study.

Cole called on the federal agency to release a preliminary findings report – so the public can digest that information and compare any changes or agency comments to a final version.

CAC members brought Thursday’s meeting to a close discussing ways various state and federal environmental officials can develop a correlation between environmental conditions and PV and cases involving blood disorders. Cole suggested monitoring fly ash sites, installing deep monitoring wells at the McAdoo Superfund site and evaluating sediment and sampling water at the Still Creek Reservoir. CAC member Robert Gadinski said a water sample taken at the reservoir yielded high lead readings at 75 parts per billion and that the water during a recent period of heavy rain turned orange, which could indicate acid mine drainage issues.

Gadinski also noted that a water hole drilled in Kline Township that was originally planned as a source for public consumption had been taken off line because of high arsenic levels.

sgalski@standardspeaker.com